Note to self: the big C

Some thoughts on the occasion of the two year anniversary of your cancer diagnosis.

On the afternoon of March 16, 2022, you called your doctor’s office to say that you found a lump in your left breast and to ask what the next step was. “The next step is you come here at ten tomorrow morning.” And, so began a journey that has taken longer than you ever imagined and is not quite over. In a way it is never over but it looks like you can finally move it to the background.

Here, in no particular order, are a few thoughts about what you learned.

Anyone can get it. No one in your family ever had cancer of any kind. You had absolutely no fear of getting cancer. Kellys did not get cancer. Apparently they do. You were diagnosed in March, 2022. Your brother was diagnosed in the summer of 2023 and gone before Thanksgiving. Your genetic testing was clean and you still got it. Remind people. Anyone can get it.

Before talking about cancer, assess your audience. Preface any conversation with “I don’t know if you’ve experienced this yourself or been with someone who has . . . .” It is amazing and distressing how often you will find yourself talking to current patients, cancer survivors or their family members.

One of the greatest revelations was just how many friends you had and how wonderful they were. If able to thank them in an Oscar night speech, the music would play you off before you could name ten percent of them.  To list the kindnesses shown would take the entire show.

Everyone’s cancer is different. Everyone’s reaction to cancer drugs is different. Don’t compare yourself to other patients. There are many reasons Facebook groups are helpful. For one thing, they let you see people who have much worse situations: medical, financial, familial, professional, social. Every aspect of life is affected. If you don’t have the same struggles, feel grateful not guilty. If you seem to be having a harder time than others, it’s not your fault. Do not feel guilty.

Admit you worry about your hair. Losing hair is the least of a cancer patient’s problems but you discovered hair is symbolic. You had no issue with going bald during chemo. Hair of some variety would be back. But thinning hair from long term medications was more upsetting. It could be a warning about what else the drug might be doing inside your body. But, even more importantly, it symbolizes that things are different now when all you want is for things to be the way they were.

You tried to find some humor in a very serious topic. You should be allowed to laugh when your pants drop to your ankles in a public place. Even if no one was there to see it, empirically, it was funny. It’s ironic when your hair starts coming back on your upper lip first, then on your scalp. There were other funny occurrences. Admittedly, not many. You just need time to think of them.

You had to introduce yourself after chemo. You didn’t recognize yourself so how could others recognize you? You never took offense. You took the offense and told everyone who you were. The same person you were before - just smaller and grayer. At least you will be after all the brain fog clears. You hope.  Brain fog is real. 

© 2024 Jane Kelly